Tag Archives: asperger’s

Shannon is becoming social (because of NAET)

My daughter “Shannon” has been going to a regular Tuesday evening party hosted by someone in her prayer group.  She happily reports conversing with various people. Some of them are family friends she should have met before, but was clueless about previously. It’s like her eyes are opening now and seeing what has been around her all along.

She reminds me of Miranda in Shakespeare’s The Tempest, who grew up on an island with only her father for company. She meets a lot of new people and responds this way: “O brave new world that has such people in it!”

Shannon’s very aware of the change herself. She said, “I remember doing some things last year, and now I wonder why on earth I did them.”

Shannon has Asperger’s, or maybe HAD Asperger’s. She is 23 and has been undergoing NAET treatments for over a year.  She has not changed anything else in her regimen.

NAET for treating autism: why does it work? BPA and autism?

waterbottlesIt’s becoming clear to me that NAET really does help treat autism. Our daughter “Shannon,” as I said in a previous post, is actually becoming social now. In every other respect, she has become normal over the years, but socially she’s been missing that ability to truly understand and relate to others. She has found the missing piece! I am so thankful!

NAET, Nambudripad’s Allergy Elimination Treatment, uses Chinese medicine theory (similar to acupressure) and “muscle testing” to desensitize an individual to things in that person’s environment that are causing reactions. Normally this is called allergy.  Hence the name.  But how does it help autism?

The DAN! (Defeat Autism Now!) doctors are virtually all parents of autistic kids themselves who grew impatient with conventional medicine’s lack of treatment options and research focusing only on possible genetic causes. These doctors banded together to figure out what works. There is a consensus among them and related organizations such as Autism Speaks that environmental contaminants, combined with genetic predisposition, cause autism.

The argument? Autism was virtually unknown 40 ago. Now, one in 100 children have it. There’s no epidemic like that which can have purely genetic causes. Something else has to be going on. As for the argument that there is more diagnosis going on, so autistics must have been overlooked 40 years ago, that’s been refuted: just look around. Autistic symptoms are obvious. Do you see one in 100 people from that generation with them? No. There is no “hidden horde” of autistics born before 1985.

So, what are those environmental contaminants? There is plenty of debate on that. Some say vaccines, others say toxic metals, and so on. Clearly whatever it is impairs the body’s ability to clear itself of toxic substances. The DAN! doctors have found that detox (using various methods) along with a gluten-free, casein-free diet helps many of these kids recover.

So why would NAET work? I am thinking it’s because the toxic substances, whatever they are, caused the disease in the first place. If the body can be desensitized to the damaging substances, it can recover many of its lost abilities.  In Shannon’s case, the NAET desensitizing treatments for the DPT vaccine and for feminine hormones have been the biggest hurdles. For others, it’s probably different. The NAET autism protocol treats for a wide array of possible contaminants.

I’m not the only mom who is happy with how her autistic kid is responding to NAET. Check out this video:

So why might my daughter be reacting negatively to feminine hormones? Surely they are just part of her body? I am realizing that the synthetic estrogens used in food packaging, store receipts, and so on may be to blame. These are bisphenyl A (BPA) and phthalates, among others. Because of them, our bodies are awash with extra estrogen. It’s affecting all of us, male and female.

Did you ever notice that plastics started being used for all sorts of new and different things in about 1992? The reason was that the industry found some new additives and improved the technology so that, for instance, cheap and durable soda and water bottles could be manufactured. Before that, drinks were packaged in aluminum cans. Our exposure to these additives, including BPA, went way up, especially for those drinking bottled water and soda a lot. Of course this BPA has been used since the 1970s in canned food liners, so we’ve had some exposure all these years. But since 1992 it’s been high.

BPA is a grandfathered chemical, which the FDA and the EPA haven’t regulated. But it’s dangerous. Check out the interview with scientist Frederick Vom Saal in the source list below. He points out that BPA has nearly the same chemical structure as DES, the synthetic estrogen once used to prevent miscarriage. DES has caused high risk for cancer in the daughters of those treated with it. DES has been banned. BPA is still everywhere. Eight billion pounds are produced every year, and much of it is winding up in our bodies, yours and mine. It’s in plastic food containers, canned food liners (and therefore in our food and drink), store receipts, lotions and shampoos. It clings to our paper money. And it’s hurting us.

Sources:

Consensus that environmental contaminants, combined with genetic predisposition, cause autism: http://www.autismspeaks.org/science/research/initiatives/environmental_factors_grants.php

Yale Environment 360 article by Elizabeth Kolbert on Dr. Vom Saal: http://e360.yale.edu/content/feature.msp?id=2344

My environmental blog where I discuss BPA regularly: http://www.home-water-filter.info/blog/

Study showing BPA clings to paper money: http://www.news-medical.net/news/20101208/Bisphenol-A-tainted-money-and-receipts.aspx

With NAET, Shannon emerges from her autism cocoon

butterflyMy daughter “Shannon” is now 23. She has Asperger’s. Being female, her case has been a mild one; she is somewhat anxious and has struggled to relate to other people, but she has not had serious emotional issues like her brother Mike who also has Asperger’s. It strikes males harder.

Shannon has been undergoing NAET treatment for more than a year now, off and on.  The treatments have located difficulties in her system especially related to her DPT (diphtheria polio tetanus) vaccines as a child. This was a surprise to me; I figured it would be the notorious MMR (measles mumps rubella) if anything.

I am thrilled to report that she is becoming a social person now, something I thought I would never see. She used to spend hours and hours in her room doing intricate beadwork, but not interacting with her family much at all. She just had no desire to do that. Conversations with her were somewhat wooden and not reciprocal. She couldn’t hold up her end of them very well at all.

About a year ago she lost interest in the beadwork.

Now she is in a regular prayer group, and goes to weekly gatherings at the home of someone in the prayer group. She is volunteering at the women’s shelter at our church and cheerily reports on conversation she has there. She also has been wanting to spend time with me, something I thought I would never see either. (I had grieved for the daughter I wished I had, but didn’t, and thought that was that.)  We took some hikes together this fall. She is proving a good companion after all. (Meanwhile she has gotten a job as a pharmacy technician, which suits her very well.)

Praise the Lord, from whom all blessings flow!

NAET is Namibudripad Allergy Elimination Therapy, using Chinese medicine theory to desensitize a person to substances which they have become allergic to or have interacted with poorly in the past. Our practitioner in St. Louis is Becca Skrainka, an RN who has been doing it full time for at least 10 years and knows exactly what she is doing.

Photo credit: http://www.fotopedia.com/items/flickr-52666376

Does Mike have to take all those supplements all his life?

pills1Does Mike have to take all those Yasko protocol supplements all his life?  This is a question I wondered about when we first embarked in 2007 on treating his Asperger’s with the Yasko protocol, based on genetic testing.

I figured the answer was yes. We’d have to give him tons of supplements all his life. The theory seemed to demand it.

Now it turns out that the answer is no, or at least not so many!  I took him to the chiropractor in July for his annual testing. She uses “muscle testing” to evaluate whether each of his supplements is of value to his body.  In particular, several of his supplements addressed a set of mutations that cause the body to make too much ammonia, causing behavior problems.This is not an uncommon set of mutations that Yasko sees, and it’s hard to treat.

Well, this July, after 2.5 years on the protocol with the chiropractor, Mike didn’t need any more the ones that “mop up” or otherwise neutralize ammonia. In fact, his ammonia metabolism was perfectly normal!!! This really floored me.  Something has changed in a big way.  I can speculate as to what, but I don’t actually know.

He’s on 10 supplements now, down from 15 the chiropractor first identified. Nearly all the dropped ones have to do with the ammonia system.

In case you are wondering why I am talking about supplements, here is the theory behind the Yasko protocol. The body has a lot of little chemical factories, in the mitochondria of each cell. These factories have inputs and outputs, and the individual processes are run by enzymes. If the enzymes are genetically messed up, creating too much or not enough of an input, that skews the system. You can’t change the enzyme imbalance. But you can supply the missing input with supplements in order to make the little factory work at full tilt like it is supposed to.  And you can supply something to “mop up” too much output, in our case ammonia. For us that was yucca and quercetin, given at each meal. Don’t ask me how these work, I don’t know! But they did.

At first I could see the effect if Mike forgot to take his pills. His behavior was atrocious.  The excess ammonia was apparently driving him nuts.  Gradually that changed though; if he forgot his pills, it wasn’t so bad. Now it doesn’t seem to matter much at all if he forgets for a particular meal.

He seems more and more normal in so many ways. Could it be that my “Curing Autism Blog” is aptly named?  I am daring to hope.

Photo credit: http://www.flickr.com/photos/rselph/

NAET for Shannon: status report

Shannon has been doing the NAET treatments for a  year now, somewhat off and on. A reader is asking how they are going.

NAET, which stands for N-somebody Allergy Elimination Treatment, involves acupressure treatment to calm the body’s allergic response for various allergens, starting with foods and, in the autism treatment, moving to vaccines and hormones, etc.  Why would this work with autism?  Because autism somehow goes with a malfunctioning immune system, which is what allergy is. Treat the allergy, and the autism gets better. Very mysterious.

Shannon is also taking some supplements, such as fish oil and phosphatidyl serine, folacal, and so on. She started these long before the NAET.

Shannon hasn’t had the emotional swings and anger that Mike has had, I think because she is female and estrogen protects her from the worst of the effects of our genetic mutations.  But she has always been very distant emotionally from everybody, including me, her mother.

That is changing, I am happy to say!  Shannon is getting much more relational.  She wants to spend time with me now going on outings, something she NEVER wanted before. She was formerly content to just do her beadwork or her computer games  in her spare time and forget everybody else.

An odd bit of information from the treatment: it was the DPT vaccine that troubled her far more than the MMR vaccine. The MMR took a couple of treatments to “clear” or neutralize in her immune system. The DPT took about 10 treatments.  So this may be the vaccine that researchers should investigate more thoroughly in regards to autism.

An invitation for an Aspie

rowboatParents of kids with Asperger’s know their kids get very few, if any, invitations to come over. My Aspies are no exception to this rule.

Mike, age 17, has gotten an invitation to go with his brothers to their friend’s vacation house 10 hours’ drive away.  They will stay for a week. I still can’t get over it. The friend specifically invited him along with his “neurotypical” brothers.

We explained to Mike that he can’t be his normal inflexible self. He has to go and hang out with the guys in the rowboat or on the bicycles, hardly his preferred activities.  Does he really want to go?

I think he realizes how special this is. He wants to go.

What a long way he has come in just 2 1/2 years!

Photo credit: http://www.flickr.com/photos/24949967@N08/3768819047/

Taking stock on Yasko protocol: how far we’ve come!

I was filing some papers yesterday and came across some comments from “Mike’s” teachers in the middle of ninth grade. That was a bit more than two years ago.  At the time, he was on supplements from the Yasko protocol, but we had not figured out which ones were helping and which were hindering. His diagnosis was Asperger’s.

His grades were dismal: two F’s, two D’s, two C’s.  His biology teacher wrote, “(Mike) is often distracted and often disrupts class.”

His English teacher: “He told me today that when he hears Sesame Street songs he feels so bad that he cannot control his reaction (he grabbed his head and started rocking back and forth because a girl in his group was singing a Sesame Street song under her breath).”

The same teacher, different day: “Today, (Mike) would not work for over half of the hour. He said he had something on his mind. He was antagonizing a student who sits near him by making grunting noises and tapping on his desk.”

As you know, the story is different now. Mike is making straight As. He’s not totally recovered from Asperger’s, mind you, but he has come a LONG way. It’s been a bit over two years since a chiropractor used “muscle testing” to weed out the supplements that weren’t helping.

“Mike” mentioned meeting another teen a few days ago who wanted to talk on and on about videogames. “I know I used to be like that,” he told me. “So I was patient with him.”

Mike is good in math???? What a shock!

“Mike” is now a junior in high school. He took algebra his freshman year and totally flunked it. He couldn’t focus on his work, was obsessed about a variety of non-scholarly subjects, couldn’t relate to peers, and generally was a total emotional wreck. He has Asperger’s, a mild form of autism.

At that time we had begun to treat him with supplements from Amy Yasko’s protocol.  But they weren’t working. Then in December or so we were able to figure out which Yasko supplements help him, and had him only on those. He has been doing better and better ever since. He’s taking algebra again this year.

At his teacher conference yesterday his algebra teacher told me she thinks he has gift for math. He asks penetrating questions. He does all his work. He is organized. He interacts appropriately with his peers in the class. He is getting an A.

This is something I thought I would NEVER see.  Perhaps he is living up to his heritage from his grandfather the CalTech Ph.D. and rocket scientist.

NAET and Autism: A Personality Change!!!

I am now fully convinced that there is a huge link between the immune system and autism.  My evidence: my daughter “Shannon’s” positive response to NAET, an allergy elimination treatment that has its roots in Chinese medicine. Allergy is of course the immune system gone awry. So treatment to eliminate allergy also eliminates autism??? So strange.

Her positive response is this:  first her long-time acne was cured, and now she’s turned into a friendly old salt. She was formerly a cheerful young adult who was definitely ignorant of what you might be thinking, and therefore occasionally thoughtless, and normally wary. There has definitely been a personality change. A good friend of mine who sees her fairly seldom ran into her a week or two ago and expressed her amazement at Shannon’s friendliness. “You would NEVER know she has Asperger’s,” said the friend. “It used to be there, you could tell. But not now.”

Shannon has Asperger’s, diagnosed at age 11. She DEFINITELY was missing those mirror cells in the brain that let us know what the other person might be thinking.

For those of you who know her, talk to her and let me know what you think!