Tag Archives: autism cure

NAET, cure for autism

Another family whose child was recovered from autism by NAET

NAET/Autism Success Story

My daughter “Shannon” isn’t the only one who recovered through NAET! (And Mike, we are hoping.) Another family with a four-year old whose only speech was echoing what he heard tells their story of recovery through NAET.

These case studies fall on the heels of news of a study where NAET led to significant, measurable improvements for most autistic children in the study after a year of treatment. “Clinically, 23 of the 30 children in the treatment group were able to return to regular school classes with their healthy, non-autistic peers after treatment while all of the children in the control group continued to require special education.”

NAET was developed in 1983 by Devi S. Nambudripad, MD, PhD, L.Ac., DC. The initials stand for Nambudripad Allergy Elimination Technique. It’s a non-invasive, drug-free, alternative therapy for allergy elimination that uses a combination of acupressure, allopathy, chiropractic methods, nutrition and kinesiology to identify specific allergens and desensitize patients to them. Dr. Nambudripad has trained over 10,000 licensed medical practitioners in the protocol. It improves a variety of ailments, including fibromyalgia.

Read more about the study here. The study was paid for by the NAET people, but don’t dismiss it for that reason! Did you know that ALL drug studies are funded by the drug makers? That’s the system we live with. The key is to have responsible researchers who carefully document what they are doing and publish in a peer-reviewed journal. That did happen here.

NAET, autism and allergy: update

Are you wondering what’s happening at the Wheelers’ with NAET?  “Shannon,” our 24-year-old daughter with Asperger’s, continues to blossom after a year on NAET treatments and some Yasko vitamin therapy. I get so many comments from people who have known her and are delighted that she is now interacting with them. It really is a miracle. She is continuing NAET treatments but less intensively.

“Mike,” our 19-year-old son with Asperger’s, has been doing NAET treatments for a year. We’re cautiously reserving judgment on results at this time.

And, there’s me! I just started NAET too, because I have been getting more and more allergic to things, and that’s driving me nuts. I had a choice: spend money on allergy shots, which aren’t guaranteed to help, or try NAET for about the same amount of money. I decided to try NAET.

I am supposing that the genetics that made my children susceptible to autism are also part of my body. Makes sense–my brother is autistic, so I must be the genetic carrier. Being female, and having grown up in an era with fewer environmental insults, I am not autistic. But I am very allergic. Perhaps our genetics involve faulty removal of toxins from the body, which are building up as I grow older and make me more and more allergic?  For example, I have been limited in the lotions I can use on my face for 20 years. I had found one with just three ingredients that seemed to work well, and used it for 20 years. But a few months ago I found it was giving me a rash. Grr. So now I’m down to one ingredient, coconut oil.

I started NAET with the new year, after taking some money out of an investment to invest in my health. It’s too new for me to provide you with any feedback, other than to remark that avoiding certain substances for 25 hours after a treatment is in fact a pain!

“I survived autism” tee shirts, anyone?

My dear daughter and I were talking today about an upcoming Walk for Autism.  “I wonder if they have ‘I survived autism'” tee shirts?” she said.

As someone who suffered from Asperger’s Syndrome from age 4 to age 22, she qualifies for such a tee shirt. (She just turned 24 and recovered through NAET plus the Yasko protocol.) I know there are some other survivors out there, mostly kids who had severe autism symptoms as very young children, whose parents put them on a DAN! protocol or something like that. But my daughter is the only cured Asperger’s kid that I know of.

Now, wouldn’t that be cool, to get them all to wear such a tee shirt?

Daughter with Asperger’s now described as “affable”

Someone asked me after church about the change he had seen in “Shannon,” my Aspie daughter, age 23. “She used to walk around with her head down all the time. But I sat down with her at the church meal last week, and she was a like a different person. She was warm and affable.”

Pretty cool, huh?

He wanted to know if a medication had made the difference. No, I explained, it was a year’s worth of NAET treatments that made the difference, as far as we can tell.

Facing skeptics on “Shannon’s” autism cure

I’m getting a lot of agreement from people who are in close contact with my daughter, whom I am calling “Shannon” on this blog. She is no longer exhibiting the hallmark of autism, inability to know what others are thinking. She is delivered from her Asperger’s, which she had from the age of four. She’s now 23.

I emailed a well-known researcher about Shannon’s cure. He politely refused to believe me. Many individuals with autism spectrum disorders, he said, perhaps 10 to 15 percent, gradually “progress to a level that is actually sub-clinical and this may be the case with your daughter.  The characteristics were more apparent in childhood but now she can perhaps be described as having an unusual personality but not the classic characteristics associated with an ASD.”

There are two arguments here: gradual transformation and persisting unusual personality.

Shannon is transformed from the person she was just one year ago. This is not a gradual change.

As for unusual personality, a mental health professional who is in Shannon’s small group Bible study told me that she believes  Shannon is interacting totally normally with others in the group. The professional is amazed, knowning Shannon’s history.

I hope those who know “Shannon” and are seeing her these days will feel free to comment on this blog post. Please don’t use her real name at this point, in case she wants privacy in the future.

Shannon herself feels an enormous difference, as referenced in my previous blog post:

http://phylliswheeler.com/CuringAutismBlog/?p=404

By the way, NAET uses Eastern medicine theory including acupressure to desensitize an individual to substances that are causing allergies or, in this case, other problems. In treating autism, I think NAET allows the body to strengthen itself against the environmental contaminants that must be triggering autism in genetically susceptible individuals. Our NAET practitioner is Becca Skrainka.

Our son “Mike” started NAET treatments in January, and we are hopeful that after a year of them he will see more improvement.  He has improved greatly from being on supplements from the  Yasko protocol, but he still is unable to understand what others might be thinking.

Mike is good in math???? What a shock!

“Mike” is now a junior in high school. He took algebra his freshman year and totally flunked it. He couldn’t focus on his work, was obsessed about a variety of non-scholarly subjects, couldn’t relate to peers, and generally was a total emotional wreck. He has Asperger’s, a mild form of autism.

At that time we had begun to treat him with supplements from Amy Yasko’s protocol.  But they weren’t working. Then in December or so we were able to figure out which Yasko supplements help him, and had him only on those. He has been doing better and better ever since. He’s taking algebra again this year.

At his teacher conference yesterday his algebra teacher told me she thinks he has gift for math. He asks penetrating questions. He does all his work. He is organized. He interacts appropriately with his peers in the class. He is getting an A.

This is something I thought I would NEVER see.  Perhaps he is living up to his heritage from his grandfather the CalTech Ph.D. and rocket scientist.

Larry King Live on finding the cause of autism

Larry King Live on CNN today covered the autism issue–the one about what the cause might be. World Autism Awareness Day was April 2, and April is Autism Awareness Month.

I am happy to see coverage on this issue.  I hope more and more people will become aware of the size of this problem, one in 150 people, and the relative lack of research that’s going on compared to funding for other maladies such as breast cancer.

http://www.cnn.com/video/#/video/us/2009/04/04/lkl.jim.jenny.autism.pt1.cnn

Jim Carrey and Jenny McCarthy are interviewed, with a video playing in the background showing Jenny playing with her no-longer-autistic son Evan.  Carrey and McCarthy think that vaccines — too many, too soon– must trigger autism somehow.  Doctors and researchers also interviewed were divided. One said he thought the vaccine trigger idea (in genetically vulnerable individuals) was “speculative” and shouldn’t be checked. Another said doctors should listen to parents, and should fully investigate the vaccine hypothesis.

Let’s say hooray for an open mind!

Teacher conferences: “I Just Love Mike.”

We went to talk to Mike’s teachers last night, in the regular teacher conferences.  I was expecting more of the same–he’s doing pretty well, but, you know, he’s still doing this that or the other squirrelly thing.

Surprise!!! His teachers say that he has been improving even during this school year, and they all see radical improvement.  His handwriting is now smaller and legible, and he’s able to keep his math homework lined up on the page. He’s trying hard to do well in school.  Best of all, he’s interacting positively. In fact several of them said, “I just love Mike.” Excuse me, WHAT DID YOU SAY???

Now, that’s not what people typically say about an autistic person. Autistic folks, generally speaking, aren’t social.  Mike has some social tendencies and was occasionally lovable before puberty, but not at all since then, until now. He has just been too full of orneriness and anger, also hyperfocusing on whatever he is obsessing about at the moment, to relax and enjoy someone else.

I am particularly surprised because he’s been on the same biomedical intervention, a vitamin/supplement regimen, for a year and a quarter now. We did some mercury detox in the summer, but nothing different since then.  To what do I attribute this postive change?  I guess the regimen, over time, is able to remove toxins from his body.  Our bodies have a natural detox system involving the methylation cycle. Mike’s is impaired, according to Yasko’s genetic testing. So we can’t rev up the methylation cycle by giving him lots of Vitamin B-12, which  Yasko and the DAN doctor would prefer to do. But we can rev it up very slightly by giving him just a bit of B-12, and we have been doing that for a year and a quarter.  So perhaps over time, this natural detox is clearing his system in some way.

Autism’s False Prophets by Paul A. Offit, MD, a review

Autism’s False Prophets: Bad Science, Risky Medicine, and the Search for a Cure, by Paul A. Offit, MD.

Published by Columbia University Press, 2008, 247 pages.

Offit, a doctor who is a proponent and inventor of vaccines, tells a sad tale of desperate parents of autistic children falling for charlatans. He details one death (from botched chelation) and plenty of wasted money, and lots of wasted breath on the subject of thimerosal and the MMR vaccine as causes of autism.

Offit has waded right into this controversy. He does some name-calling in the subtitle of his book, and ridicules those who disagree with him, suggesting they can’t count.

Here’s his summary (p. 247):  “The science is largely complete.  Ten epidemiological studies have shown MMR vaccine doesn’t cause autism; six have shown thimerosal doesn’t cause autism; three have shown thimerosal doesn’t cause subtle neurological problems; a growing body of evidence now points to the genes
that are linked to autism; and despite the removal of thimerosal from vaccines in 2001, the number of children with autism continues to rise.”

Offit says that epidemiological studies have refuted two vaccine-related hypotheses:

* that thimerosal, a mercury additive, causes autism, and
* that the measles virus in the MMR shot causes autism.

He lists a number of epidemiological (population-wide) studies to back these up.  He goes into absolutely no detail though. Bryan Jepson, MD, in his book Changing the Course of Autism, goes into plenty of details questioning these studies.  I would like to challenge Offit to respond to Jepson’s analysis, line by line.

Offit’s tone is most offensive when he quotes anti-vaccine activist and parent  Jenny McCarthy as saying “in 1983, there were 10 vaccines. Now there are 36.”  Offit then counts 7 in 1983 and 14 today and names them–polio, measles, etc.  Then Offit says “Misstatements of fact didn’t seem to matter. Thirty-six vaccines, 14 vaccines, close enough.”(p. 242-3)

Now, I know she is counting shots or sticks, like any mother would, while he is counting the several shots and boosters required for each disease as one vaccination.  He’s comparing apples to oranges and then adding a put-down. Does this make her look bad, or him?

Now, let’s look at his logic. He says that many studies are showing that neither thimerosal nor the measles virus from the MMR shot causes autism. Therefore, Offit says, vaccines don’t cause autism.

Whoa, Nelly. There are many more features of vaccines than just these two that could possibly cause autism. This is precisely Jenny McCarthy’s point: even if thimerosal and the measles virus are not to blame, the sheer number of vaccines being given our tiny children with immature immune systems could be causing autism, in some way not fully understood.  THIS question has not been the subject of a study yet, I believe.  Such a study would use epidemiology to compare a vaccinated population with an unvaccinated one.  There are such vaccinated populations:  Amish, and a home-birth medical practice that has delivered 30,000 children in Chicago. This study needs to be done, if the vaccine controversy is going to go away.

Here’s the reason why we need to do this study–we can all see that the autism rate has been rising with the number of vaccines given, as Jenny McCarthy was pointing out.  Even if we don’t have a theory of exactly HOW the vaccines may cause autism, the vaccines could still be causing it.

Offit thinks the cause of autism must be genetic.  Researchers are finding a collection of mutations that appear to be linked to autism. Actually my family has participated in this research. In our case, there clearly is a genetic component, with autism occuring in two generations.

But an epidemic CANNOT have a sole genetic cause. This is more logic. Mutations don’t just  start happening like crazy all by themselves. There has to be something in the environment that has changed, and that started changing significantly around 1990.

I think that many or most of the kids affected by the epidemic have only a minimal genetic tendency, and that a toxin of some kind is to blame.  For these kids, “recovery” is possible. I say this because I know moms of kids through the Internet whose kids are recovered. Jenny McCarthy’s son is recovered. In fact you
can see before and after videos  of recovered kids.  Treatments varied, but the result is the same.

Now, Offit plays the video card the other way. He cites a study where researchers looked at baby videos of older kids who are autistic. In their baby videos the researchers found autistic traits even before the age of 1. Therefore, Offit says, the MMR shot, given after the age of 1, isn’t to blame.  Well, I guess he can have that point. But he needs to look at the before and after videos of these other kids, the ones who are recovered. Offit actually denies that recovery is possible and praises parent activists who take this position as well.

And while he thinks autism must be genetic, he completely ignores the work of Defeat Autism Now! (DAN!) doctors and Amy Yasko on providing supplements to fill in the gaps in mitochondrial cycles such as the methylation cycle, gaps caused by genetic mutations.  The DAN!/Yasko approach is purely pragmatic — sketch the possible cycle problem, and try a supplement to fix it. If it works, keep it.  Offit is a theorist, and isn’t into pragmatics. He also doesn’t have an autistic child who is rapidly growing up, like many of the DAN! doctors do.

It’s been a long and vicious controversy. Offit carefully details it –how English doctor Andrew Wakefield, the first to link autism to the MMR vaccine, falsified data and was ultimately stripped of his medical license in the UK. How the possible thimerosal link was sensationalized, with the only supporting lab data available based on non-human studies. How both hypotheses are apparently proved wrong by a number of epidemiological studies (but he gives no details, as I said).

Then he describes various situations where charlatans have hoodwinked the public, and says that that is what is going on here.  Apparently he wants us parents to sit and wait while our kids are growing up, until the medical community comes up with a cause and then a cure. Never mind that the research being funded is aimed at genetic causes, not environmental.  Never mind that autism research is amazingly poorly funded, given the size of the epidemic. Never mind that our kids will be grown up in the meantime.

I am sad that the kids are losing out, as result of all this crossfire.  I hope that researchers will move their focus to a variety of environmental factors that could be causes, including the greatly increased use of plastics since 1990.

Especially I would like to see the epidemiological study I mentioned before, comparing vaccinated and unvaccinated populations.  The reason is the preponderance of anecdotal evidence that children become autistic soon after vaccination. And that’s not just for the MMR vaccine.

And what’s a parent to do? Since some kids are recovering, I believe it’s my responsibility as a parent to find out what I can and try what I can afford.  We do need to be cautious, especially not doing anything that could possibly hurt our children.  We need to be wise.  We need to share what works with each other. We do need to heed Offit’s warning that there are people out there ready and willing to prey on us.

Offit’s allies are parents whose primary motivation seems to be concern about hurting a child’s feelings by telling the child he’s in need of a cure.  That must be a bit hard on the self-esteem, I agree. These parents prefer to emphasize the special abilities that come with autism, including unusual memory.

So, here’s the question:  Does your child know he is different? If your child had the opportunity to choose, what would he or she choose? To seek a cure or not?

Well, I have a 21-year-old daughter with Asperger’s who has made this choice herself, after turning 21. She has chosen to go to the DAN! doctor and take the supplements. She is proud of her special abilities in memory and oddball sense of humor. But she has a sense of adventure, too.

That’s what we all need to do, we parents of kids with autism:  figure out what the kids would want, if they were old enough to choose. –Phyllis Wheeler

The Pro-Vaccine Side Writes a Book

The pro-vaccine forces have now written a book, Autism’s False Prophets by Paul A. Offit, reviewed in a kindly manner Jan. 12 by Donald G. McNeil Jr. of the New York Times at http://www.nytimes.com/2009/01/13/health/13auti.html?_r=2&scp=2&sq=Autism&st=cse

One of the arguments advanced by Offit and others interviewed, is that the autism epidemic is caused by genetics.  However, it appears only logical to me that no epidemic can have only genetic causes.  There must be other causes as well.

Several people quoted in the article say that the research proves vaccines are not tied to autism. However, the book by Bryan Jepson, MD, which I have been studying goes over these studies in detail and shows the flaws. There are plenty of flaws.  Jepson’s conclusion: nothing at all has been proven so far.  Offit’s conclusion:  vaccines are vindicated.  Both these men are respected MD’s.  I’m going with Jepson’s careful, step by step analysis of studies supporting both sides.

How about the argument that vaccines overwhelm babies’ immune systems?  The New York Times says, “Dr. Offit notes that current shots against 14 diseases contain 153 proteins, while babies cope with thousands of new foreign proteins daily in food, dirt and animal hair, and that the smallpox vaccine that nearly every American over age 30 got as a child contained 200 proteins.”

This seems to me to be unrelated information.  We are not talking about harmful proteins. We are talking about harmful viruses.  Jepson describes a study by English researcher A.J. Wakefield.  Wakefield’s theory is that the measles virus creates an abnormal immune response. The damaged immune system then allows the measles virus to linger in a subacute, chronic state, causing gut inflammation. The resulting holes in the intestinal wall allow various toxins to pass into the bloodstream, causing secondary brain injury and subsequent autism.

Jepson (p. 82) describes a study Wakefield did, published in 2002 in Molecular Psychiatry, looking at 91 autistic patients. He tested for measles virus RNA in the ileal lymph nodes next to the small intestine.  Seventy-five of these 91 autistic children had the measles virus RNA in these lymph nodes. Of kids in the control group, only five of 70 had measles RNA in these lymph nodes. Now, that’s a significant difference.

Jepson (p. 82) quoted another researcher, P. Ashwood, who used a different method and confirmed measles-virus antigen in 87.5 percent of ilial biopsy specimens from 10 autistic children, compared to none found in the 18 controls.  The researchers tested for other viruses (rubella, mumps, adenovirus, herpes simplex 1 and 2, and HIV) but did not find them. Ashwood’s study has not been published, according to Jepson’s notes.

The remaining question, wrote Jepson, was whether the measles RNA found was from a vaccine or from a “wild” strain.  Japanese researchers isolated measles virus from blood samples from a small group of autistic children. In every case, the RNA sequence was consistent with the vaccine strain, wrote Jepson (p. 83)  This study by Kawashima H. et al was published in the journal abbreviated Dig Dis Sci in April, 2000.

I hereby challenge the New York Times reporters to read Jepson’s book before they write any more. And also, stop the bias. I can see a bias just from the teaser at the end of the NYT article:

“Next week: In the Personal Health column, Jane E. Brody will write about efforts, so far fruitless, to find a cure for autism.”

There–the newspaper has already judged that the efforts to find a cure are fruitless.  I challenge Jane Brody to watch the videos I posted a few days ago (http://technorati.com/videos/youtube.com%2Fwatch%3Fv%3D-fouye8Y4bg), documenting the recovery of several children.  She needs to demonstrate to me that she is following the expected journalism ethics of impartiality.  I am not seeing it, currently.–Phyllis Wheeler

Source:

Jepson, Bryan, MD, and Jane Johnson, Changing the Course of Autism, Sentient Publications, 2007, 354 pages