I just ran across your CuringAutismBlog while looking for information about yeast
treatment and handwriting. It’s amazing how you can wander around in the ‘autism biomed web’ seemingly forever and still find something new. Maria Janik, who co-runs the Indiana biomed list and is the Northwest Indiana chapter co-ordinator for NAA, said that one of the big sites actually has samples of kids handwriting before and after GI yeast treatment which show improvement handwriting quality improvement of years after only a few days on yeast treatment. I can’t find anything – do you know where to look?
You mentioned your kids have Asperger’s. Did you read the Age of Autism story on the “experimental” work being done at the Harvard Center for Non-Invasive Brain Stimulation that apparently (at least in the few people tested) will “cure” Asperger’s (to some degree at least – I’m not sure we know how much) at least for a while using transcranial magnetic therapy (TMS)? I put “experimental” in quotes because I don’t really consider it to be experimental except in terms of whether it works in large numbers of patients.
It’s been shown to work – it’s already known to be safe as Canada approved it for
depression and it seems to be “quasi-approved” here for “treatment-resistant
depression”.. (Meanwhile, the FDA has either “quasi-approved” or “completely approved”) deep brain stimulation for treatment-resistant depression as well.. So.. They’d rather you get your head cut open and an electrode stuck in the bottom of your brain rather than have a coil innocuously waves around your head? (And if you say, “Oh that hurts!” they can immediately turn it off?) But they’d much rather you just take the “convenient once a day” (and expensive) antidepressant pills instead.. Don’t you just love our FDA? <sigh?>
Anyway, have you tried nasal oxytocin supplementation? Oxytocin is a natural
9-amino-acid peptide that seems to have social bonding effects in humans as well as other species studies, as well as being involved in the milk let-down reflex and childbirth. There is not a very big literature base on it’s use, but there is some evidence that it improves the ability of autistic people to correctly detect emotion in otherwise neutral spoken sentences, as well as improving encoding of “positive social memories” (haven’t read the paper yet). I’ve used it (I have some kind of “mild Asperger’s” with strange endocrine/adrenal/stress-response problems), and have NOT seen the kinds of social effects I expected, but then – I’m 30 and my parents are not exactly social butterflies either (my Dad probably has Asperger’s of some degree as well). Strangely, it does appear to have increased my binocular fusion ability. I think it also had very subtle social effects – mainly feeling a bit more at ease in crowds of people – and decreased the amount of antidepressant I take to zero, and reducing my anti-anxiety usage by half.
I know of it’s effect in one neurotypical woman – Susan Owen’s daughter who takes it because there’s a study showing it is low in patients with fibromyalgia (which her daughter appears to have). In her, it seems to have had really positive and noticeable social effects – but the difference might be to and interaction with her social environment (high school). So it appears to be a mixed bag, so to speak.
I have a protocol to test combining oxytocin supplementation and the TMS treatment, on the hypothesis that whatever change the TMS induces in the brain (the CNBS people are hypothesizing that it “rebalances” the brain activity of people with Asperger’s) and the oxytocin production/usage system in the brain are dependent on each other. Combining the two may create what might essentially a long-term conditional “cure” of sorts.
Do your children have problems with oxalic acid, and have you looked into the “Vitamin K Protocol”? It’s started as a way to use supplemental vitamin K (K2 actually – which is normally created by a gut bacterium from the K1 form in eaten plants) to regulate calcium in the body (vitamin K is needed to “activate” a number of proteins, including several of the blood-clotting proteins, and two important calcium-handling proteins). This reduces the amount of ionized calcium in the blood, which can apparently cause all sort of havoc in the brain.
There are a number of other parts to the protocol, mainly bicarbonate, which helps to counter acidosis which appears to be occurring, and iodine to treat a form of
hypothyroidism. The hypothyroidism and the acidosis both cause the liver to overproduce oxalic acid, which leads to oxalate problems (the enzyme lactate dehydrogenase produces oxalate instead of pyruvate in an acidic environment, if I recall right). There also appear to be problems with all sorts of ‘anion exchangers’ in the boy (including the gut oxalate exchangers, which inappropriately let oxalate out of the gut), and with phosphorus handling. For this reason, liquid phosphorus is the newest addition to the protocol. The archives of the group (Vitamin K) have a number of testimonials from parents who’s children essentially turned around on vitamin K (some who didn’t really respond to anything else). The K protocol also supplements vitamins D and A, which are extraordinarily intertwined, and actually need each other to signal their respective receptors in the body.